What we do
We support children and youth with sickle cell to reach their full potential!
We are dedicated to supporting individuals and families affected by sickle cell disease, advocating for their needs, and driving research forward. Our comprehensive programs and services aim to address the physical, emotional, and financial challenges of sickle cell disease, empowering individuals to thrive and live fulfilling lives.
Patient Support
We offer emotional support, educational guidance, and practical assistance for sickle cell patients.
Education and Awareness
Providing necessary education and awareness to sickle cell.
Advocacy and Policy
We advocate for sickle cell patients through our policy work, fighting for access to quality healthcare, affordable treatments, and comprehensive care models.
Research and Innovation
We accelerate research and innovation to develop life-changing treatments and cure sickle cell disease, transforming the future for patients and families worldwide
What We Do
Patient Support
- Counseling Services: Our trained counselors provide emotional support, guidance, and coping strategies to individuals and families affected by sickle cell disease.
- Peer Support Groups: We facilitate online and in-person support groups, connecting individuals with others who share similar experiences and challenges.
- Financial Assistance: We offer limited financial assistance for medical expenses, transportation, and other essential needs.
Education and Awareness
- Workshops and Webinars: We organize educational events, workshops, and webinars on sickle cell disease management, treatment options, and lifestyle adaptations
- Patient Education Materials: We develop and distribute informative resources, including brochures, videos, and online content, to empower patients and families with knowledge.
- Awareness Campaigns: We launch public awareness campaigns to educate the general public, reduce stigma, and promote understanding of sickle cell disease.
Advocacy and Policy
- Advocacy Services: We provide advocacy support to individuals and families navigating the healthcare system, insurance claims, and social services. A case in point is the interaction between our co-founder and a sickle cell patient during an outreach program at Korle-Bu Teaching Hospital, as seen in the attached picture
- Policy Work: We collaborate with policymakers, healthcare providers, and community leaders to promote policies and programs that benefit the sickle cell community.
- Community Engagement: We engage with local communities, organizations, and healthcare providers to raise awareness and build support for sickle cell disease initiatives.
Research and Innovation
- Research Funding: We provide grants and funding support to researchers and scientists working on sickle cell disease projects, including new treatments, therapies, and potential cures.
- Clinical Trials: We facilitate access to clinical trials and innovative treatments for individuals with sickle cell disease.
- Medical Conferences: We organize and participate in medical conferences, workshops, and symposia to advance knowledge and collaboration in sickle cell disease research.
What We Do
Patient Support
- Counseling Services: Our trained counselors provide emotional support, guidance, and coping strategies to individuals and families affected by sickle cell disease.
- Peer Support Groups: We facilitate online and in-person support groups, connecting individuals with others who share similar experiences and challenges.
- Financial Assistance: We offer limited financial assistance for medical expenses, transportation, and other essential needs.
- Workshops and Webinars: We organize educational events, workshops, and webinars on sickle cell disease management, treatment options, and lifestyle adaptations
- Patient Education Materials: We develop and distribute informative resources, including brochures, videos, and online content, to empower patients and families with knowledge.
- Awareness Campaigns: We launch public awareness campaigns to educate the general public, reduce stigma, and promote understanding of sickle cell disease.
Education and Awareness
Advocacy and Policy
- Advocacy Services: We provide advocacy support to individuals and families navigating the healthcare system, insurance claims, and social services. A case in point is the interaction between our co-founder and a sickle cell patient during an outreach program at Korle-Bu Teaching Hospital, as seen in the attached picture
- Policy Work: We collaborate with policymakers, healthcare providers, and community leaders to promote policies and programs that benefit the sickle cell community.
- Community Engagement: We engage with local communities, organizations, and healthcare providers to raise awareness and build support for sickle cell disease initiatives.
Research and Innovation
- Research Funding: We provide grants and funding support to researchers and scientists working on sickle cell disease projects, including new treatments, therapies, and potential cures.
- Clinical Trials: We facilitate access to clinical trials and innovative treatments for individuals with sickle cell disease.
- Medical Conferences: We organize and participate in medical conferences, workshops, and symposia to advance knowledge and collaboration in sickle cell disease research.