About us
Who we are
We are the leading voice for sickle cell disease support, education, and advocacy
The foundation was founded by two passionate ladies who have been personally touched by sickle cell disease. We understand the physical, emotional, and financial toll this condition takes on individuals, families, and communities. Our founders’ personal experiences and struggles with sickle cell disease fueled their determination to create a supportive community, advocate for change, and drive research forward.
Our approach
Our Mission
Our mission is to enhance the quality of life for individuals and families affected by sickle cell disease, and to promote research, awareness, and understanding of this devastating condition.
Our Vision
We strive to create a world where individuals with sickle cell disease can thrive, free from pain, stigma, and limitations.
Our Partners
Our Story
We understand the physical, emotional, and financial toll this condition takes on individuals, families, and communities. Our founders' personal experiences and struggles with sickle cell disease fueled their determination to create a supportive community, advocate for change, and drive research forward.
Our Values
- Compassion: We empathize with the struggles of individuals and families affected by sickle cell disease, and we provide a safe, supportive environment for them to share their experiences.
- Empowerment: We believe in equipping individuals with the knowledge, resources, and support necessary to take control of their health, make informed decisions, and live fulfilling lives.
- Advocacy: We are dedicated to amplifying the voices of the sickle cell community, promoting awareness, and advocating for policies and programs that benefit individuals with sickle cell disease.
- Research: We are committed to supporting innovative research that will lead to better treatments, improved healthcare outcomes, and ultimately a cure for sickle cell disease.
Our Work
We provide a comprehensive range of services and programs, including:
- Patient Support: Counseling, peer support groups, and financial assistance for individuals and families affected by sickle cell disease.
- Education and Awareness: Workshops, webinars, and educational resources for patients, families, healthcare providers, and the general public.
- Advocacy and Policy: Collaborating with policymakers, healthcare providers, and community leaders to promote policies and programs that benefit the sickle cell community.
Our numbers that speak
We have numbers that push us to give in our best and make sure that we break our own records. We are happy to be growing and helping more day by day.
Members Worldwide
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Children Helped
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Funds Raised
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Food Provided
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